Henrietta Lacks and immortal HeLa cells: a legal but not moral tale

I just finished The Immortal Life of Henrietta Lacks by Rebecca Skloot.

OK, I am not your typical reader. I am a scientist and have done quite a bit of cell culture. (I am retired now and read a lot.) I knew something about Henrietta Lacks and HeLa cells and thought the book would be only somewhat interesting and really not worth the time. But I was wrong. The reviews have all been so positive, I figured I should give this book a try. The story here is well-told and adds much detail that I thought I wouldn’t care about. (Did I mention that I was wrong?).

The doctors treating her cancer took her cells without informed consent. (But that was accepted practice until fairly recently.) This was the first immortal human cell line and was extremely important to medical science. There were medical advances and money was made. Yet the Lacks family got nothing. It was all legal but I doubt many would consider it moral.

There are several stories: Henrietta, her immediate family, the extended Lacks family, and the injustices done to them. And these are important stories. The book would be worthwhile if all it did was tell these stories. But it also puts these stories into the larger contexts of ethics, science, medical research, race, class, journalism, poverty, and education. So it is very complex and somehow Ms. Skloot manages to weave all of these facets into a fascinating and educational book in much less than 400 pages.

The reviews have been great and the book has become a best seller. And there is a simple reason for this. Rebecca Skloot has transformed an interesting story of an injustice into a fascinating book.

And unlike many of those who benefited from these cells and this family, Rebecca Skloot did something very strange. She actually tried to help this family. She has established The Henrietta Lacks Foundation to help Henrietta Lacks’ family. She is donating a potion of the book’s proceeds to the foundation and all visitors to the site may donate as well.

This story is really well-told. And different readers may enjoy one aspect more than another. But all aspects are well done and I think fairly covered.